"I do not understand the mystery of grace -- only that it meets us where we are and does not leave us where it found us." -- Anne Lamott
Well, I'm pretty sure the title of this post says it all but just to be clear...
On Friday, March 17th, I was diagnosed with metastatic cancer with an unknown primary source.
For those of you who are a little uncertain what metastatic cancer means, it is cancer that has spread from a primary location to another location in your body.
Yeah, it's still a little hard for me to wrap my head around too.
However, if I'm honest, it really wasn't that shocking given the golf ball size swollen lymph node in my groin. Hearing the words come out of my doctors mouth was still, needless to say, disheartening.
For me, the last six weeks have been filled with doctor appointments, antibiotics, ultrasounds, CT scans, a colonoscopy and upper endoscopy, biopsies and waiting.
A lot of waiting.
And you probably want to know the story, where I'm at and how I'm moving forward with this very strange and unfamiliar diagnoses.
I've been debating on whether or not to share and how much to share because there is so much unknown still. Part of me wants to keep this tightly wrapped in my protective bubble of a handful of family and friends because it makes me feel safe. Ultimately, I think there is great power in vulnerability. I think there is a power so mighty and fierce in the collective whole, and that in some strange way, that by sharing, something great will come from this.
In some strange way, from the moment I was diagnoses, I've felt this, in an almost unexplainable way, was a gift that will unfold with time. And part of my purpose in this life is to share, with the hopes that someone reads something that may help them.
So here is the story, where I am at with all of it and what I am currently doing about it.
THAT LYMPH NODE IS HUGE!
About six months ago I went to the doctor for a swollen lymph node in my left groin. It was big enough to be concerning and it was painful and also coincided with another infection but my doctor didn't seem too concerned. Even when in my gut I wanted to press for more tests, I ignored it and kicking and screaming, got on the antibiotics she prescribed and the infection and lymph node went away with a seven day dose. Two weeks later, I was climbing Mt. Whitney and my swollen lymph node was a thing of the past. I didn't really think much of it other then my initial gut feeling of, "Something feels off here."
Then at the end of January I developed another infection and the lymph node became swollen once again and started to become extremely painful. I decided to go back to my doctor and see what she thought. However, this time I went back to my OBGYN instead as I had a better relationship with her and I knew she would be fully on board to do anything to get to the bottom of this.
We decided to put me on stronger dose of antibiotics for 14 days because there was a chance that if this was again an infection, it could be contained in the lymph node. So, again kicking and screaming, I started this gnarly dose of antibiotics but when nothing changed, we both became concerned and decided that we needed to explore this further.
The following week I went in to have an ultrasound which showed that there was definitely an abnormal growth. Duh. I'm no medical professional but the golf ball size lymph node in my groin was a pretty good indication that something was abnormal.
Then came the biopsy; which, let me just say, I've been poked and prodded so many times in my life and I usually barely blink and eye, but this one got me good. More so emotionally then anything.
And then it was back to waiting. Lots of waiting. Which is always the worst.
Then on Friday, after an emotional week of doctor calls and waiting, I got the call from my doctor with the final pathology report: Metastatic Cancer. I had cancer, it had spread to the lymph node and we have no idea where it started in my body.
hey, what's up your um....?
Serendipitously, I had already had my annual colonoscopy schedule for March 21st and my mom was flying in March 20th to take me to my appointment and spend a little quality time with me. My colonoscopy is a part of my yearly screening for colon cancer, which I had when I was twenty-four.
Part of me thought this was going to be it. I was almost sure of it. But after my upper and lower scope showed no signs of stomach or colorectal cancer, I was rather shocked (and relieved). We could cross those off the list. Can you see the excitement in my eyes right after my procedure. ;)