"I know the rain is cold my dear, but dance in it a little while you wait for the sun." - a.j. lawless
It's been two days since my surgery and I'm home, resting somewhat comfortably on my couch with my legs up on top of a pillow. Aches and pains fill my left side and pelvis from the procedures they performed. One was the inguinal dissection of the left lymph nodes and the other was a D & C (Dilation and curettage) which is a procedure to remove tissue from inside my uterus. Basically, my doctor scraped out the first layer of my uterus with a rake-like medical devise. There's a mental image for you.
I had no idea what to expect from this surgery and I did too much of the very thing you shouldn't do and research way too much and totally freaked myself out. I've only really ever known surgery to be excruciating. When I had part of my colon removed in 2005, complication arose and I got extremely sick and was in a tremendous amount of pain. I had a pic line and drains and an ileostomy bag and was very sick. Naturally, I figured this surgery would bring about similar pains. It's funny how our mind does that to us.
Given the nature of that surgery and the complications that arose, its safe to say that I developed a good amount of PTSD. However, this surgery hasn't been nearly as rough but I imagine, and I'm prepared for, its own set of hardships.
I did have to leave the hospital with a drain connected to the area where they removed lymph nodes which I'll have for a minimum of two weeks. I have to empty it twice a day which was similar to my ileostomy bag. I also left with some mighty good pain meds but I hate being on them. They make me nauseous and I feel like I'm floating out of my body. They also make me feel like I"m having a panic attack and I can't think. So I'm trying very hard to not take them. But I think I may cave today as I overdid it this morning and now am dealing with more pain then I had since the surgery.
My mom went to run errands and my roommate left to go volunteer with some of her students so I have the house to myself for a bit. It's an eery feeling. I haven't really been alone since finding out the results of my PET scan which were worse then I had hoped. Apparently, the cancer was in multiple lymph nodes along my left side and had spread to a pelvis/sacrum node as well and I can't help but wonder if that is why my lower back has been hurting so bad the last few months. I can't help but think back to a lot of my so called symptoms and wonder if that was the cancer the whole time.
They still don't know exactly where the cancer started. They don't know how to diagnose me and my oncologist even said that this case is very rare. It's not normal. Here is the thing about me though; I'm all for not being normal and being unique but in this case, I'd actually prefer to be a little more mainstream. I'd actually prefer my cancer be a little more black and white. I'd prefer to know exactly what to expect but I don't and that is a hard place for me to be.
My world feels a little foggy right now and this surgery is only the beginning. I have a long road ahead of me and I have no idea what is in store. All I can do at this point is hope like hell that what they find isn't as serious as I feel like it may be.
I'm grateful though. I'm grateful for all the love a support I've received. From my family, my friends, strangers. Thank you.
Thank you to all those that have shared with me that I am on their prayer lists and their aunt's church prayer lists and so forth. I know I have an army behind me. I know I have some mighty good connections to the big G.O.D so I feel safe and in good hands. But I'm still scared.
I don't want to have cancer. It's a very strange feeling to know that there is something inside of me and it's very job is to seek and destroy every last part of me until I take my last breath. It wont come to that mind you. I'm stronger then this beast. This beast doesn't quite know what it's dealing with and I'm trying very hard to not show it my fear.
But I'm scared.
Words like more surgery, radiation and chemotherapy have already been dropped and that scares me. That scares the crap out of me. I don't want to lose my hair. I don't want to pump my body full of poison or fry my reproductive organs under a machine.
I keep repeating conversations that my old roommate and I had about what we'd do if cancer came back into our lives. We are both rather holistic and I always thought I'd fight this with natural medicine but here I am, now faced with that choice and I'm scared of the decision I have to make. I don't know what to do. All I know, without a doubt, is that I want to live and I want to live in a mighty big way. I know that I have a lot left to do and I also know that this experience is part of that plan. But I still don't really know what to do regarding this cancer that I am facing right now. So I'm thankful for this time of the unknown. This time of not having to decide anything.
Why does it take something bad happening to remind us of how bad we want to live? Why does it take something like this happening to remind us of how lucky we are or how much we still want to do with our lives?
I hope I remember when this is all said and done, to live like I've never lived before. To take even more risks and be even braver in my choices. To say yes more to the things that light me up and no to those things that are petty and bullshit.
I hope I forgive more easily and love even bigger.
I hope I tell those I love them every single time I talk to them.
I hope I close more doors that no longer deserve my time and attention so that other doors, doors that are waiting to be open can do so.
But then again, why am I waiting for all this to be over to do so. Screw that. The time is now. Live like this now. Don't wait. Don't you dare wait for the right time because that time IS right now. Take it from me, when you find out something like this, you have a moment when everything flashes before your eyes and you wonder why you aren't living the way you believe you should be.
So from here on out...while I fight this fight, I'm also going to live this one precious life of mine exactly as I want to.
Wild, free and full of purpose and adventure.
I hope you do too. Live your life they way you've always wanted to.